#bath My boys ... just thinking about Autism differently
Thursday, April 2, 2015
#bath My boys ... just thinking about Autism differently: Day 7 #bath My boys ... just thinking about Autism...
#bath My boys ... just thinking about Autism differently: Day 7 #bath My boys ... just thinking about Autism...: Day 7 of #bath My boys ... just thinking Autism differently my final blog in the run up to world Autism Day ... I have tried to write a...
Day 7 #bath My boys ... just thinking about Autism differently
Day 7 of #bath My boys ... just thinking Autism differently my final blog in the run up to world Autism Day ...
I have tried to write a blog this
evening but I am so exhausted by all of today’s antic's…and I
have read so many wonderful statements and comments over the course
of today the awareness has been so awesome that I really cannot think
of anything to say without using someone else's words.
My boys and myself have achieved so much faced with our daily challenges, so I will leave you for now with this …. they say a picture can paint a thousand words, so here you go, my boys most definitely do think differently about their autism !
My final #bath picture My boys ... just thinking about Autism differently
www.gettogethercornwall.org.uk
Location:
Cornwall, UK
Wednesday, April 1, 2015
#bath My boys ... just thinking about Autism differently: Day 5 #bath My boys ... just thinking about Autism...
#bath My boys ... just thinking about Autism differently: Day 5 #bath My boys ... just thinking about Autism...: After tomorrow evening I will be taking a wee break from blogging, I know I will be sharing away again soon, there is parts of my life that...
Day 6 #bath My boys ... just thinking about Autism differently
After tomorrow evening I will be taking
a wee break from blogging, I know I will be sharing away again soon,
there is parts of my life that are yet still too raw to share.
I will let you into a little secret,
last night was really my final choice #bath picture … but as many
of you lovely lot know I always have something up my sleeve, even my
poor mother has not got a clue, god love her … she tried her best
this morning to get it out of me.
I appreciate all your messages of
support they have come from near and far, I know a few of you have
said that can hear my voice when reading this late at night, “I'm
hoping the sound of my voice does not result in you all having
nightmares”
I want to especially thank my long
suffering dad for putting up with me and taking the time to read my
blog, I know the word “BloggING” was some what confusing for him
! I feel a clip around the ear coming for that one …. no seriously,
my mum and dad have gone out of their way to support me with the way
I wanted to bring up the boys … when I went home to tell them that
I had been told “Liam would not achieve much” their answer was,
“really” !!!
I taught the boys to use sign
language, my parents learnt it and still use it today … my dad even
misuses the naught sign a bit to much. He even came up with the
“don't touch me game” which every now and then he still plays
with Liam … it helps Liam to over come being touched.
I most definitely can say I get my
determination from them ... they took our kind of bullying approach
to autism and embraced it.
Bullying Autism … We use this word
bullying in our conversations a lot well “my husband does,” he
uses it in a descriptive way.
Really up until writing this blogs,
“I would cringe at the sound of it” then I would speak at
hundreds of miles per hour to make sure the person we were speaking
to understood that we were not abusing our children …
Bullying is actually what we do to the
condition ... we have pushed ... pulled and challenged our children
to think … think outside of the box about why they can not deal
with the noise levels,
why they cannot touch that chair or
table
why can I not have my hair cut
why they cannot put their socks on
without it being the left leg first and never the right
why does everything have to be clean
... by 'bullying' their understanding …
We have taught them to control their
own conditions, everyday we hear and see them bullying their Autism.
If I actually wrote everything that happened in my day to day life I
think I would be called a liar, they reduce me to tears at times and
make me laugh so hard my side hurt at others.
So I suppose I should share this
evening #bath picture with you ...
Tomorrow is our day of celebration our
chance to go Red for Autism … A day for people to think differently
! enjoy
Location:
Cornwall, UK
#bath My boys ... just thinking about Autism differently: My boys ... just thinking about Autism differentl...
#bath My boys ... just thinking about Autism differently:
My boys ... just thinking about Autism differentl...: My boys ... just thinking about Autism differently I am hoping by the 2nd of April you will have an idea of why I wanted to share our b...
My boys ... just thinking about Autism differentl...: My boys ... just thinking about Autism differently I am hoping by the 2nd of April you will have an idea of why I wanted to share our b...
Tuesday, March 31, 2015
#bath My boys ... just thinking about Autism differently: Day 5 #bath My boys ... just thinking about Autism...
#bath My boys ... just thinking about Autism differently: Day 5 #bath My boys ... just thinking about Autism...: Day 5 #bath My boys ... just thinking about Autism differently I changed my plan for tonight's blog ! I will start by sharin...
Day 5 #bath My boys ... just thinking about Autism differently
Day 5 #bath My boys ... just thinking about Autism differently |
I changed my plan for tonight's blog !
I will start by sharing, I have had a
really bad, autistic day in the house and by writing this piece
instead it's helping me put things back into perspective.
Those that know me will tell you I am
not one for the limelight, I hate talking on stage and most deffo in
front of the camera so this is a mega deal for me to put our life out
onto the big wide web, especially in the way I have … it just shows
you how passionate I am about Autism and getting the world to think
differently about my boys … and their autism, if just one person
thinks differently then the time spent will be worth it, I will have
gained my art work and hopefully changed someone’s path in life.
So in a way tonight's blog is really
one of the most important parts of this #bath project, I am hoping
that someone somewhere shares or reads this … I've had a bad day,
to much to write about but lets just say that a person or family
somewhere has more than likely had exactly the same sort of day or
worse. They could be hitting rock bottom right now as I write,
wondering where to go and who it is they ask those all important
questions.
like …
Do you think my child has something
wrong with them ?
Why is he not sleeping ? Why does he
not look at me ?
I am his mum and I think my child has
autism, will you help me ?
Am I reading to much into it ? Is it me
?
The first question I would answer …
will you help me ! At my lowest point it was my husband and sister
that had a hand in bringing me back … I listened to people saying
how taking your own life is the most inconsiderate thing you can do
to someone you love … I hear talk of 'how could they leave their
family that way, they must not have cared for their loved ones'.
It's not about care .. love or respect
its about being stood on that cliff top looking out to nothing, l
call it crossing over to the unhinged side or in my case taking the
car for a drive hoping to drive it straight at a tree, not one for
drawing up a detailed plan me … I cared more than anyone will ever
know, I cared so much that it made me sicker, I'd cared that much it
put me in that driving seat.
Whether you are caring for an autistic
child or not the most important reason to get up in the morning is
you, if you cannot take care of yourself what chance has anyone else
got with you on their side … As my mental state got to full blown
panic attacks and the fear of hurting my children got to saturation
point consuming my every minute, awake or asleep .. I put my hand out
not for help but just to brake my silence, thankfully my family were
there … I then took the next step and somehow mustered up the
strength to put volume into my voice so that I could be heard and in
a way I am still doing that volume thing right now.
So what have l learnt from the last
twelve years … knowing my stress points and how too best deal with
them … I will always have them, there will always be another battle
for me ... from seeing some random person watching me and jumping to
there conclusion to me jumping to my own conclusion about what they
think of me and my beautiful children …my sense of humour helps to
get me through, I mean who goes out in the wee small hours of the
night wearing nothing but a nightie and had my plan worked, think of
the poor ambulance crew .. they would have had a awful fright.
They say a wise person learns from
someone else mistakes … my mistakes have been my path, if I had
learnt to ask for help I would have been a lot wiser a lot sooner !!
Hope you enjoy tonight’s #bath
picture. My boys … just thinking about Autism differently
Location:
Cornwall, UK
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