Day 5 #bath My boys ... just thinking about Autism differently |
I changed my plan for tonight's blog !
I will start by sharing, I have had a
really bad, autistic day in the house and by writing this piece
instead it's helping me put things back into perspective.
Those that know me will tell you I am
not one for the limelight, I hate talking on stage and most deffo in
front of the camera so this is a mega deal for me to put our life out
onto the big wide web, especially in the way I have … it just shows
you how passionate I am about Autism and getting the world to think
differently about my boys … and their autism, if just one person
thinks differently then the time spent will be worth it, I will have
gained my art work and hopefully changed someone’s path in life.
So in a way tonight's blog is really
one of the most important parts of this #bath project, I am hoping
that someone somewhere shares or reads this … I've had a bad day,
to much to write about but lets just say that a person or family
somewhere has more than likely had exactly the same sort of day or
worse. They could be hitting rock bottom right now as I write,
wondering where to go and who it is they ask those all important
questions.
like …
Do you think my child has something
wrong with them ?
Why is he not sleeping ? Why does he
not look at me ?
I am his mum and I think my child has
autism, will you help me ?
Am I reading to much into it ? Is it me
?
The first question I would answer …
will you help me ! At my lowest point it was my husband and sister
that had a hand in bringing me back … I listened to people saying
how taking your own life is the most inconsiderate thing you can do
to someone you love … I hear talk of 'how could they leave their
family that way, they must not have cared for their loved ones'.
It's not about care .. love or respect
its about being stood on that cliff top looking out to nothing, l
call it crossing over to the unhinged side or in my case taking the
car for a drive hoping to drive it straight at a tree, not one for
drawing up a detailed plan me … I cared more than anyone will ever
know, I cared so much that it made me sicker, I'd cared that much it
put me in that driving seat.
Whether you are caring for an autistic
child or not the most important reason to get up in the morning is
you, if you cannot take care of yourself what chance has anyone else
got with you on their side … As my mental state got to full blown
panic attacks and the fear of hurting my children got to saturation
point consuming my every minute, awake or asleep .. I put my hand out
not for help but just to brake my silence, thankfully my family were
there … I then took the next step and somehow mustered up the
strength to put volume into my voice so that I could be heard and in
a way I am still doing that volume thing right now.
So what have l learnt from the last
twelve years … knowing my stress points and how too best deal with
them … I will always have them, there will always be another battle
for me ... from seeing some random person watching me and jumping to
there conclusion to me jumping to my own conclusion about what they
think of me and my beautiful children …my sense of humour helps to
get me through, I mean who goes out in the wee small hours of the
night wearing nothing but a nightie and had my plan worked, think of
the poor ambulance crew .. they would have had a awful fright.
They say a wise person learns from
someone else mistakes … my mistakes have been my path, if I had
learnt to ask for help I would have been a lot wiser a lot sooner !!
Hope you enjoy tonight’s #bath
picture. My boys … just thinking about Autism differently
No comments:
Post a Comment