Sunday, March 29, 2015

Day Three of #bath My boys ... just thinking about Autism differently


Day Three of My boys ... just thinking about Autism differently 

I am getting exhausted writing this blog and dealing with my day to day autistic house ... that is nothing compared to the feeling of exhaustion that my son experiences every minute of his day, he has the physicality of living with severe Ketonic hyperglycemia also his emotional exhaustion of dealing with his autism.

Let me introduce you to my son ... Kieran

Kieran was also a premature baby, my child that was determined to fight and achieve all his milestones and at the same time be extremely poorly, so much so that when I asked for help the doctors looked at me ... while they determined whether his illness was down to me or not, it was me that figured out how to best manage his condition and all the while knowing in my heart Kieran was on the spectrum too.

In total it took six long hard years to get Kieran's illness and Autism signed off ... a battle I neither wanted nor needed. People always forget that Kieran is autistic, my child that can hold it together especially in school ... he is the one that no one sees crumbling inside and out.

I can only describe our relationship as a roller-coaster ride as often when he's asleep at night l cry about our love ... hate relationship. I love that my boy gets this world and at the same time I hate that he gets it so well ... I know, very double standard of me !!

We are so together yet so far apart  and what keeps me going is knowing he gets that ....

He is my rule enforcer .....  
My "You said you were going to do that"  ..... 
My reality check ....
My mini me.

I know we have a very rocky path ahead of us, I'm hoping one day he will sit and read this, knowing I feel his pain and most definitely understanding his frustration with me.  I know how hard it was for him to be in this picture project and I hope he remembers the laughs and fun it turned into. 

... thank you Kiery for being you ! X

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